The sad part is, bone marrow transplants are relatively easy (if not somewhat, okay a whole lot, painful.) If that is all it takes, then the fuss of how incurable/untreatable this disease is kind of falls flat.
I had a friend in grade school/high school who had one about every other year for a degenerative bone disease. She was always in pain afterward, but the procedure was only a three day ordeal (check in/prep, operation, recovery) almost, but not quite outpatient, and a whole lot faster than say tonsil or appendix removal.