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<blockquote data-quote="Treebore" data-source="post: 2919670" data-attributes="member: 10177"><p>I hope your body responds to the drugs well, and I especially hope the disease responds well. Catching it early doesn't mean anything. What matters is if the drugs control the disease. If it does, great! If they don't, well, you read the pamphlets.</p><p></p><p>So are they still using prednisone (or any steroid) and azulfidine (or any super-aspirin) as their primary method of treatment? Or are they using the new drugs that have come out in the last two years on you?</p><p></p><p>I only met one person who used the new drugs, after being unsuccessful with Pred. and Azulf., they felt like the drugs helped, but they still got worse and ended up with the extreme surgeries.</p><p></p><p>Also, if they said it is in your Colon you may want to get a second opinion. If it is in your SI then they are probably correct. They could still be correct if it is in your Colon, but a fair number of "specialists" have been found to say it is Crohn's when it is actually Ulcerative Colitis. Since the drugs differ significantly, if your Doc is wrong you will end up needing severe surgery just to save your life. So consider getting a second opinion, of a doctor your primary doctor doesn't work with, but is a Internal Medicine specialist on Crohn's disease.</p><p></p><p>Also, if your Doctor isn't a specialist, then there is good statistical reason to doubt his diagnosis, non-specialists mis-diagnose Ulcerative Colitis about 30% of the time as being Crohn's. Like I said, if it is in your S.I. and not your Colon, then he is over 90% likely to be correct, whether he is a specialist or not. If it is in your Colon, I very, extremely, strongly recommend a second opinion.</p><p></p><p>I also very strongly recommend you limit your diet the way I said to in the other thread until your "flare up" is totally under control. If you like the idea of those surgeries so much, then go ahead and keep eating normally. Otherwise a "normal" diet is total BS, so severely limit what you eat, carefully experiment to find things that don't agravate you. I can tell you right now, get rid of bread and all other grain based foods, except JAPANESE rice. Also get rid of milk. Cheeses may be OK, probably yogurt too, but straight milk your just begging for it.</p><p>Also stay away from grease. Greasy steak, pork, bacon, chicken, etc... is out. You shouldn't be eating much meat anyways, especially beef and pork products.</p><p></p><p>So restrict your diet until it is under control. When you find foods tempting you just visualize those nasty surgeries if the Crohn's isn't brought under control. Then realize your "imagination" is off by a factor of about 100 times, and don't eat. </p><p></p><p>Good luck, and I'll be praying for you.</p></blockquote><p></p>
[QUOTE="Treebore, post: 2919670, member: 10177"] I hope your body responds to the drugs well, and I especially hope the disease responds well. Catching it early doesn't mean anything. What matters is if the drugs control the disease. If it does, great! If they don't, well, you read the pamphlets. So are they still using prednisone (or any steroid) and azulfidine (or any super-aspirin) as their primary method of treatment? Or are they using the new drugs that have come out in the last two years on you? I only met one person who used the new drugs, after being unsuccessful with Pred. and Azulf., they felt like the drugs helped, but they still got worse and ended up with the extreme surgeries. Also, if they said it is in your Colon you may want to get a second opinion. If it is in your SI then they are probably correct. They could still be correct if it is in your Colon, but a fair number of "specialists" have been found to say it is Crohn's when it is actually Ulcerative Colitis. Since the drugs differ significantly, if your Doc is wrong you will end up needing severe surgery just to save your life. So consider getting a second opinion, of a doctor your primary doctor doesn't work with, but is a Internal Medicine specialist on Crohn's disease. Also, if your Doctor isn't a specialist, then there is good statistical reason to doubt his diagnosis, non-specialists mis-diagnose Ulcerative Colitis about 30% of the time as being Crohn's. Like I said, if it is in your S.I. and not your Colon, then he is over 90% likely to be correct, whether he is a specialist or not. If it is in your Colon, I very, extremely, strongly recommend a second opinion. I also very strongly recommend you limit your diet the way I said to in the other thread until your "flare up" is totally under control. If you like the idea of those surgeries so much, then go ahead and keep eating normally. Otherwise a "normal" diet is total BS, so severely limit what you eat, carefully experiment to find things that don't agravate you. I can tell you right now, get rid of bread and all other grain based foods, except JAPANESE rice. Also get rid of milk. Cheeses may be OK, probably yogurt too, but straight milk your just begging for it. Also stay away from grease. Greasy steak, pork, bacon, chicken, etc... is out. You shouldn't be eating much meat anyways, especially beef and pork products. So restrict your diet until it is under control. When you find foods tempting you just visualize those nasty surgeries if the Crohn's isn't brought under control. Then realize your "imagination" is off by a factor of about 100 times, and don't eat. Good luck, and I'll be praying for you. [/QUOTE]
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