RE: Reveille

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As soon as I walked into his room, he started to have a spasm. I took his hand and tried to talk him down. Alas, it had no effect. I broke down and cried. That’s when I heard his heart monitor flat line. I couldn’t stop crying and was saying ‘Oh God, oh god’ over and over. The nurses and doctors held him down and administered defibrillation. They brought him back thank god.


Mandy, I don't know you and I'm going to say some things that may seem impossible to you right now, or even harsh. But think about them, and think about what I'm really saying.

This type of somatic and neurological behavior seems indicative to me of progression, and possibly also as to cause, of his exact condition. So reactions like this (the spasms) need to be carefully analyzed and investigated and tested.

My suggestion to you and to anyone else who is interested is to research all you can about the symptomology he has expressed thus far, and look for clues in his diary records, medical history, or any other types of writings or reports of behavior he has evidenced in the past.

You would be surprised at how many laymen, when motivated, can provide vital information, or even make valuable diagnoses of their own, to the doctors or medical staff in such situations. But time is of the essence and so you will want to begin your investigations as quickly as possible, if you have not already done so.

Doctors do not usually have the time to make exacting and forensic analyses and discoveries of a person's past, they usually rely upon only two things to make their diagnoses in most cases, prior medical records, which are usually very incomplete at best, and by correspondence - that is by comparing one set of historically agreed upon symptoms or test results against another.

That takes time, trial and error, testing that misdirects, and painstaking comparative analysis and often leads to misdiagnosis, especially when the patient is unable to effectively communicate their exact state or condition.

But if you research, observe carefully, and think about everything you've seen or can discover about his past you might suddenly realize that you possess a clue that is vitally beneficial. And in the meantime, it will give you something productive to do which may very well be helpful in the case, and helpful to him.

Also, you should prepare yourself for the fact that no matter what you do, the doctors do, or his intentions, Rev may very well die. Not through anayones fault, but because people can only know so much, and often we realize things too late, and because in the end everyone dies. That is not comforting, and I know that from personal experience, but it is nevertheless the truth. So start to prepare yourself for that possibility right now. Some things are simply out of your control. And you should not blame yourself or anyone else for being human, and for things failing despite everyone's best intentions and actions. Unfortunately this world is transitory at best, and that's just the way things work.

On the other hand, never give up. Do what you can to discover what is actually happening and you could very well help the doctors to understand something of which they are now completely unaware. And that could very well save his life. So, do all you can to help. Do not think anything you might discover is silly and useless, explore all possibilities. You know these spasms may very well be a symptomatic and even systemic clue as to what is really wrong (that is what I suspect given what you have described). In either case you might be able to help figure out something of value.

In other words pray as if everything is up to God, but work as if everything is up to you.

And for my part I will pray and fast again this weekend.
And Godspeed, and good luck.

I really, really do wish you all success, but that might not be possible until the real problem is discovered and addressed. Sometimes nothing can change until the real problem is corrected.

So Godspeed in discovering and correcting the real problem as well. May God give you all wisdom and insight.

Find the cause and you might be able to effect the cure.
 

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Sound advice Jack7. ;)

I sincerely hope Rev gets better. I've always loved reading what he has to say on these boards. My family and I have placed some candles on our altar especially for him. Since I heard the news, I've thought about him everyday, and I pray he gets better soon.
 


In other words pray as if everything is up to God, but work as if everything is up to you.

Amen!

C'mon, Rev- you've moved up to #1 on my list of ENWorlders I'd like to meet, man!
 




BTW Mandy, I want to commend you. This is a very scary situation and I know all too many people who would run away from it. So I just want to let you know your courage and commitment to Charles is recognized and applauded. Same for his mother and sister. I've seen all to many blood relations run away as well. Many of them my own, from me, when I should have died.

So be sure he will appreciate it, does appreciate it, and that miracles do occur, so don't give up until its over. Having people there, letting him know you want them to fight, does make a difference. It definitely helped me fight, and I do believe that is why I lived. So let him know, and rest assured he will fight to live for you.

My thoughts and prayers continue to be with all of you.
 

Very dumb question, form what Jack7 aid:
why not trace Rev's movements and contacts over the 2 or 3 day period before he got sick, and maybe see if there's anything in that?

Stung or bitten by an insect perhaps when out with pals on a walk? maybe thus getting an infection?
Can West Nile fever do this kind of thing?? wrogn side of the Atlantic so I don't know much about that illness, but I recall there's some damn nasty bugs transmitted by bites that affect the CNS.

Given something to eat, drink or maybe a thing he touched that caused an unusual reaction? Doesn't have ot be a normal allergic reaction.

Long time ago my house got damp proofing put in...the fumes from it made me and the workmen who did it, horribly, almost delusionally ill, Ugh.

Sudden onset or spike of diabetes? It can just hit folk suddenly, usually kids, and sometimes it isn't an absolute but spikes up and down for a while first. That can put you in a coma.

Write it all down, analytically.

Maybe no use, but may help, and at worst, least it will give your mind something to do that's not so hurtful, which is important :)
 

Stung or bitten by an insect perhaps when out with pals on a walk? maybe thus getting an infection?
Can West Nile fever do this kind of thing?? wrogn side of the Atlantic so I don't know much about that illness, but I recall there's some damn nasty bugs transmitted by bites that affect the CNS.

Given something to eat, drink or maybe a thing he touched that caused an unusual reaction? Doesn't have ot be a normal allergic reaction.

Long time ago my house got damp proofing put in...the fumes from it made me and the workmen who did it, horribly, almost delusionally ill, Ugh.

Sudden onset or spike of diabetes? It can just hit folk suddenly, usually kids, and sometimes it isn't an absolute but spikes up and down for a while first. That can put you in a coma.

Write it all down, analytically.

Maybe no use, but may help, and at worst, least it will give your mind something to do that's not so hurtful, which is important

Very sound advice.


BTW Mandy, I want to commend you. This is a very scary situation and I know all too many people who would run away from it. So I just want to let you know your courage and commitment to Charles is recognized and applauded. Same for his mother and sister. I've seen all to many blood relations run away as well. Many of them my own, from me, when I should have died.

So be sure he will appreciate it, does appreciate it, and that miracles do occur, so don't give up until its over. Having people there, letting him know you want them to fight, does make a difference. It definitely helped me fight, and I do believe that is why I lived. So let him know, and rest assured he will fight to live for you.

And a very wise and true set of observations.
 

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