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The diagnosis is in

Ghostwind

First Post
If you've been following my Live Journal or this thread then you know that I've been very sick for the past several months. The official diagnosis is in. I have Crohn's diease. I was very concerned that I would wind up having both Crohn's and Celiac dieseases given how my body was reactign when I was eating flour and wheat products, but the genetic markers for Celiac came back negative.

It is a huge relief actually knowing so a course of treatment can now be followed instead of just throwing meds at the wall and seeing what sticks (metaphorically speaking). Right now, I'm on 6 different medicines, including Percocet (wheee!) but that will eventually be reduced to just one or two in about 8 weeks if my body responds to the meds well. Apparently, I was diagnosed in the early stages so the chances of medicinal treatment being completely successful in managing the disease is very high. In short, no surgery for me at least in the foreseeable future. Of course, the Nurse Practioner gave me a handfull of pamphlets and information about the disease, which did help me understand what was going on. Surprisingly, there isn't a dietary restriction. I can eat pretty much what I want. However, when I have flare ups, there is a list of recommended foods that should be eaten to lessen the symptoms (think bland foods). I go back in 4 weeks for a check up so let's hope the meds take right away. :)

Because of this I'm still planning on driving down to Origins on Saturday (assuming I feel good enough in the morning) and either coming home that night or the next day. Magnificent Egos has promised that if I stay, I have a bed in their hotel room. My other option was a couch or sleeping bag at Chris Gath's house, but I think I'll take the bed if I need it. It's a 3 to 3 1/2 hour drive southeast for me, so depending on how tired the day makes me, I just might try to make it back home Saturday night. But then, I may just stay in Columbus so I can watch the Nascar Nextel Cup Daytona 400 race on TV since it's a night race. Daytona is always a track that makes for interesting races because of the restrictor plate racing. Regardless, I am looking forward to seeing friends that I haven't seen for over a year. So if you're at Origins on Saturday, stop by the Magnificent Egos booth and look me up. I should be there, hopefully.
 

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Glad to hear you finally have a diagnosis, and it is something that looks to be pretty treatable.

Best of luck getting on the road to recovery.
 


I'm glad to hear you have a diagnosis. Not knowing and not having a defined course of treatment is such a strain.

If you don't mind some advice from a complete stranger, I'd say take the Magnificent Egos gang up on their offer and have a bed. Don't overstress yourself by driving back home, even if you feel like you can. Be nice to yourself. You deserve it.
 

Best of luck with your recovery, Steve!

If it's any help, David Garrard, the Jacksonville Jaguars' backup QB has Crohn's, and he was able to get healthy enough to continue (successfully!) to play professional football. Hopefully, you'll be able to rebound like he did and life will be (somewhat) normal.
 

My cousin has Crohn's disease. I know he was uncomfortable, that is probably putting it mildly, for quite a while. I think it was originally misdiagnosed as lactose intolerance.

Good luck on getting the meds and treatment all sorted out as quick as you can.
 


Sorry to hear :(

Check out whatever alternative methods you can as I know that modern medicine can't do much more then slow the disease.

My Dad has been fighting ALS for 13 yrs now using Chinese and alternative medicine, and he’s got the doctor’s floored as to why he is still walking around.

A couple friends of his have used both to combat terminal cancer, and all that have stuck to it are still kickin’.

Best of luck. Hope you can find something that works for you.
 

Thanks, everyone. One thing I am noticing already is that taking all of those meds does wear me out more. I'm going to give it a few more days to see if it goes away. May just be my body compensating for all of the new meds (and there is a bunch).
 

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